November 2002 rediagnosed with a recurring tumor I am going to bring you through the whole fun thing
|
|
| |
|
|
| |
This is where you stick random tidbits of information about yourself.
|
|
|
|
Brain Tumor History And Other Rants
|
|
| |
Tuesday, May 20, 2003
So Saturday night was my benefit. I have DJ’ed 100’s of parties. Done several benefits. But being on the other side of the table was weird to say the least. Seeing so many friends in one room at one time was great. Old and new, people I haven’t seen in let’s not say how many years, too long. So I re-established contact with several people. Made some new friends, got support from people I never knew before. It was quite humbling. I picked all the winners for the raffles. Some people are luckier than others I guess. A couple people won multiple things. But some people know how to win these raffles. They buy up a bunch of tickets and flood the ticket bags and increase their chances I guess. But Frank, New York City Shoes? Something changed with you over the years? OK, Frank is married we will give him the benefit of the doubt.
Overall it was really nice I swear the 4 hour party felt like 2 hours. I just wish I could have talked with more people and spent more time with everyone. I was glad I got blood that morning I think that gave me energy for the party. By the end I was just floating though. Totally exhausted, when was the last time I was up until past 1 am? A long time, I was shot. I am happy to have this support to help me pay all the medical stuff I have over my head. I am very thankful to everyone who worked so hard on the event to make it happen. Starting with (shameless plug, in no order of importance) John and Ruth Ann, my parents, Maureen, Len Bonnie Nathan & Jay, my sister and husband. To all the contributers, and donators Thanks a million. To all my friends from MJI and Premiere, thanks for the killer music gifts for baskets, I mean come on an autographed Iron Maiden book, you had to hear the maniac that won it scream and make devil fingers.
Thanks to everyone who came to the event or bought tickets or donated. You guys rock!
OK enough mushy stuff.
So Sunday was quiet, food shopping, gardening, normal life stuff, no drama, sorry.
Monday I had to go back to Morristown for a blood test. I am thinking no problem I should be so out of the woods. Yeah, OK, so my white cells are up, they are fine. Red blood cells up, no problem there. Aah Platlets, DOWN. Why won’t they just multiply in my body and leave me alone. So they sent me in for another platlet transfusion. Whoever donated these was great, no reaction (normally I get some hives any where from a couple to a ton all over). But they pre-medicate you with a lot of benedryl, and that has the tendency to wipe you out and make you really tired. So my day was pretty shot. That is it for that day. Pretty boring, and tired from a transfusion. Tuesday I was off no doctor appointment, I cherish these days now, especially when I am feeling good, which is this week until next Thursday.
So my schedule is like this:
Wednesday I have to go to Morristown to get my blood checked.
Thursday off.
Friday I have to go to NYU to get an MRI, this is going to be my mid-point MRI to see how the first 2 chemo cycles have gone. MRI at 10am Doctor appointment in NYC at 12pm.
Morristown also wants me to come in Friday to check my blood before the long weekend.
I am going to attempt to get my blood checked in NYC to avoid going to Morristown.
Then Morristown wants me to come in next Tuesday for another blood check.
AAAAAAAHHHHHHH. I want to stay home in my cave and hide!!!!!
Next Thursday and Friday start my 3rd round of chemo. Those days feel like a dark cloud just creeping towards me. I hate it. 8 days of chemo-sickness. OK so it will provide me with more material than gardening for this forum, I just would rather make it up and not go through it. I am trying to look at it like ok when I do the 3rd round I will be turning this thing towards the end. Like I am looking for the light at the end of the tunnel. You know all that hokey positive stuff. Trying to rationalize modern medicine torture.
So, that’s all I got for today.
So if you are new to this blog thing since I am sending the link around don’t forget to check out the old stuff it is filled with information about my condition and funny doctor and hospital anecdotes.
8:27 PM
|
|
| |
|
|
|
