November 2002 rediagnosed with a recurring tumor I am going to bring you through the whole fun thing


























 
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Brain Tumor History And Other Rants
 
Thursday, May 08, 2003  
So this week has been kind of uneventful, or I am getting used to the poking and prodding. Monday, I went to the Cancer center in Morristown to get my blood checked. My whites were half of what they were on Friday so I am super-susceptible to germs. My platelets were also low. So I got set up for another platlet transfusion. When I went in by the nurses they asked me if I had a porta-cath, I think that is the spelling? These are little ports you can have surgically put in your body, so when you need a transfusion they just pop into this under your skin to get into your blood. A nurse in New York told me this could be another source for infection, so right there I am out. So now that that is explained. I said to the nurse no way I love getting stuck. They all looked up at me like, what? I said just kidding. Ok now that I wrote it out and explained it it isn’t funny. So I got my platlets, a lot of times you can break out in hives from this. Which I did I got about 10 little itchy hives, and was on my way. Tuesday I hid out at home from the world and germs. Wednesday was back at the doctors for a repeat of Monday. This time my hives were worse. I got one on each eye lid, some on the arms legs. It isn’t the worst thing they just itch like hell until they go away. I did feel a little light headed and dopey for the rest of the day. No comments about that. That night about 9 o’clock they came back the hives. My whole back arms hips itching like crazy. So I started loading up on benadryl to try to put them off. I took about 75 mg I think it is. Eventually they went away around 11 I don’t know if it was the medicine that helped or just time. But try going to sleep while you itch. Not good so I stayed up until I was comfortable and super tired.
Today is Thursday and it is another day of hiding in the house from germs. I have to go back to the doctor tomorrow and I am hoping to see my platlets back, and my white count higher.
We will see.
I have gotten dates for new New York appointments also. Friday the 23rd I go in for a MRI to check the mid-point (I am doing 4 cycles I have completed 2) chemo results on the tumor. I also am set up for my next chemo on the 29, and 30 of May I am not looking forward to that cloud of doom. Man I hate being chemo sick and having the dates on the calendar stinks. But you got to “live for the day” all that crap. Hey the person that wrote that didn’t have chemo days on the calendar


8:28 AM

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