November 2002 rediagnosed with a recurring tumor I am going to bring you through the whole fun thing
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This is where you stick random tidbits of information about yourself.
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Brain Tumor History And Other Rants
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Wednesday, August 27, 2003
So here’s the lay of the doctor hell week so far. Monday blood test, everything still ok. Tuesday I trek into the city with my last MRI in hand so I can get a new one to compare. I go into the MRI machine at NYU, a new one about 1.5 million, this one is just for head cases like me! I get the scan done, about 45 minutes in the tube. I go over to the doctors get weighed in, blood taken, see the doctor. Back in April I went to the ER after a crazy seizure, what do I bring the doctor? My cat scan from that trip and not the MRI from May. Keep in mind I have about 7 or 8 of these films all in the same type of big envelopes in 2 different places in my house. Half of them aren’t labeled. So call it dumb or an innocent mistake. I go to the city and only get one of 2 things done. So today Wednesday I go to Morristown get my blood worked up, I need another transfusion of platlets, and my white counts have crashed again. Now follow this Monday all was clear, Tuesday into the city accomplishing only ½ of what I needed, so I have to go back on Thursday, Wednesday I get my 5th transfusion and my whites crash. Tomorrow, Thursday I have to trek back to the city with my correct MRI film. And Friday I go back to Morristown to check my blood again. A 5 day marathon of doctors. Yours truly is thrilled.
I am still in the process of waiting for Cobra and my insurance company to play catch up right now. In the mean time I am laying out some money until I get paid back from the insurance company. So far I needed about 150 for 2 prescriptions, not bad right. Well I had to tie up one credit card for the MRI to the tune of $2950. And tomorrow I tie up another one for a prescription I need to the tune of $3500. Now I know what you are saying, you get the money back, but it is still freaky to be laying out and holding these balances. One tip before you go on cobra renew as many prescriptions as you can. That way when there is that 3 week lapse you don’t have to play the lay out and wait to be repaid game!
My dog bit my finger accidently last night and since I don’t have any white cells they gave me this crazy horse pill anti-biotic to fight any infection.
In other recent news this past weekend I actually went out and had a life. Yes what you read is true. My friend wanted to go out to a Corvette show in Carlisle Pa. My blood numbers on Friday looked good, and one of the nurses convinced me to go. Of course 2 boys never plan ahead. So Friday night we are trying to find a room in a rinky dink town with ½ a million people in it. No go on the room so I stayed over his house and we drove out on Saturday morning. Now Carlisle is in the middle of Pa. about ½ hour from Gettysburg and 40 minutes from Harrisburg. It is out there. We get there about noon. We ate McDonalds. Yes I ate fast food! For a guy that has had to be germ phobic because of my white cells or lack of this is a major jump. Hit the fairgrounds, you have never seen soo many of one type of car in your life. No matter how much you love your car, you don’t compare to these people. The kicker is at the show was a guy that I see at the clinic in Morristown, I didn’t know until yesterday. But I ended up eating several different foods from fast food and restaurants. It was like I was cheating on myself. Unbelievable so I was hanging out this weekend, what a concept. Then it was back to the doctors this week, hell week.
8:13 PM
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