November 2002 rediagnosed with a recurring tumor I am going to bring you through the whole fun thing
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This is where you stick random tidbits of information about yourself.
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Brain Tumor History And Other Rants
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Tuesday, October 07, 2003
So where are we at? Well the blood is doing ok. The platlets are a little low but whites are up, and I will forgo juggling knives any day if I can eat whatever I want, and not have to worry about germs. I got over the shop rite “event”, went to see Billy Hector. Unbelievable. The guy is a vampire that doesn’t age, but his talent is like wine and always gets better. Never pass up Billy Hector. I got to talk with him for a minute after the gig. I was trying on each break, but the guy gets busy with fans, and dammit the women love Billy. No guy has a chance when Billy plays, it’s Billy’s house! So at the end I got to grab him for a minute. I said, “Hey Billy, my girlfriend called you earlier in the year about me, I went in for some surgery for a brain tumor and all yadda yadda, he looks at me oh yeah… hey there is another friend of mine here going in for brain surgery, do you have any words of wisdom. I said well the first time I did it, my friend wrote to me fuck that tumor and that helped keep me on track. So of all the random nights, I finally get to see Billy with some of my friends that picked me up, and there at the club is a woman going through the same surgery, non-cancerous. How weird. I have been trying to see him all year and on that night there is another head case. Well she goes this month and I know she will kick ass. Fastforward to last Thursday I went into NYC for an EEG and a doctors appointment. I met a new Neuro-Oncologist I think I am going to use that works with my current doctor and is seeing a lot of patients from my doctor who moved away. I told them about my shop rite seizure. I got a once over they talked about uping my medications and I discussed staying out on disability because I really don’t feel up to the work thing right now and they agreed.
So then I got to go to work with some friends from my old job. This guy Tim had organized it and got Rocker Diva Lisa and Party Diva Molly to attend also (3 of the many laid off musketeers). It was a very cool lunch and great to see everyone and not at the office but in a social setting. Big props to Tim the social coordinator of all things lunch! Seeing close friends from work make you realize the things you liked about your workplace, and not seeing those people anymore stinks.
Fast forward to Friday. We went to Brooklyn for some parties we had to attend. We pack up the dog, abandon the cats, iguana, and fish and go!
Friday’s excitement. Well we got to Brooklyn settled in and wouldn’t you know it BANG. I get another big one. I go into the living room, I lay down on the carpet. Twitch, twitch twitch. I am face down, and I can feel my face just rubbing away at the new carpet. My arm starts to go a bit. Twitch, Bang, Bang and the hits keep coming. This is turning into a bad day. Bang Bang Bang Bang Bang Bang, Release, twitch, pull, twitch. DONE. I have no feeling on my left arm or I don’t think below the waste. The insult to injury is my right side of my face on my cheek bone I have a rug burn from my face rubbing on the carpet. So Mo who is sitting with me through the whole fish out of water experience drags me over to the couch. I see my left arm plop down but it might as well be someone else’s arm because I don’t feel it. Man I hate these things. Why they gotta mess with me. Reset the Bob’s never gonna drive clock. I have never had more than one in a day. So one relief I get is if I have one I am set for the day! Hey you have to grab onto the little things to relieve you.
Fast forward to Saturday, we are traveling to a 1 year old birthday party. I am a bit wound out in the morning. I am hoping nothing will happen, and at the same time I was kind of thinking I hope something happens before I get there so I can get it over with for the day. Talk about talking yourself into it. So of course Bang. Twitch, Twitch Twitch The face starts going right there in the car. This one is short though maybe a minute of really just face twitches. So there it is. Over for the day, I paid my dues. Now my most recent theory is the fact that I spread my med’s out. Instead of taking them 3 at a time. I take one an hour for 3 hours. Then repeat in the afternoon and night.
I haven’t had one since Saturday and haven’t heard back from the doctor yet.
I go in tomorrow for a blood check, and I will check my drug levels also.
Anything else new … not really just trying to stay sedated and on the level. I am questioning being in public at all especially alone, I live a big what if “it” happens.
It stinks and who needs it.
4:05 PM
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