November 2002 rediagnosed with a recurring tumor I am going to bring you through the whole fun thing
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This is where you stick random tidbits of information about yourself.
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Brain Tumor History And Other Rants
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Wednesday, January 07, 2004
So it’s a new year. On 1/1 I experienced my first “event” since 12/19. It was weird because it was very light if I can use that term. Simply a little facial activity and maybe 45 seconds long. So I am still keeping up with my bi-weekly seizure activity. I go see that dr. tomorrow. Every time I try to get out, they pull me back in!! If you don’t get the movie reference, forget it. I also started on the first my chemo maintenance regimine that my neuro-oncologist outlined for me:
Impression and Recommendations:
Clearly, any further therapy must await complete resolution of his pancytopenias. (getting my blood counts back) However, after his next brain MRI in 2 months’ (the end of October) time I would recommend his starting up the following “maintenance” chemotherapy regimen, which should be extremely well tolerated: (a) Temozolomide at 75mg / m2 / day x 42 consecutive days at bedtime followed by a 14 day break. (b) calcitriol 0.5ugm daily continuously.
So the first night SUCKED. Imagine just getting a hangover and no partying. I awoke about 2am knew I was nauseous, and going to be sick. From about 2:30 am to 4:30 am I puked my brains out. Or possibly just a bunch of bile. I was pissed the next day and not a fan of this treatment. I have pre-medicated each night since and done pretty well. I haven’t gotten sick since. I still hate taking the chemo. I hate taking it every night. But they say this is a preventive maintenance measure. Again they give you 2 choices: fight it take the abuse from drugs or don’t. Didn’t they used to say drugs were bad for you….. look what they did to Elvis!! I am not going out in the bathroom… At least not without a good book, wait Elvis had a book with him…. Never mind….
I Went to the Jacob Javits Center for the bike show this past Sunday. Did I ever tell you I hate crowds? Well I do. Orange County Choppers, last year I heard that no one cared they were there. This year you couldn’t get near their location none the less see the bikes. When I knew the entire contour of the guys butt in front of me, and I was pretty sure we were intimate, I had had it. I did get to see Indian Larry, If I have to explain you wouldn’t understand. I hate to break this news Larry don’t shower. There were some really tricked out bikes. And all the manufacturers were there, most of them I am not too interested in. BMW Suzuki, Yamaha, etc they don’t do much for me.
8:07 PM
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